| International
Ventilator Users Network |
.Support and news for the ventilator-dependent
community and the healthcare professionals that serve them.
IVUN publishes a quarterly issue, IVUN News |
| Breethezy |
Respiratory education for
improving communication between healthcare professionals and
vent users; breethezy@aol.com.
Barbara Rogers, the director of this program,
has compiled useful information for the health professional
and the patient, both from her own experience and that of friends
and colleagues in the field. |
| International
Polio Network (IPN) |
|
| Japanese
Ventilator Users Network |
|
| The
Baku Baku Club |
Japanese Ventilator Users Parents
Association |
| Australian
Ventilator Users Network |
|
| Paraplegic
& Quadriplegic Association of Queensland |
|
| European Alliance of Neuromuscular
Disorders Associations (EAMDA) |
7-11 Prescott Place, London SW4
6BS. Phone +44 171 720 8055; Fax: +44 171 498 0670; email: mail@eamda.sonnet.co.uk |
| Association des Insuffisants
Respiratoires |
A.I.R.Belgium@village.uunet.be |
| Muskelsvindfonden (Denmark) |
msfoplys@post1.tele.dk |
| Spinal
Injuries Association |
|
| Lihastautiliitto
ry (Muscular Dystrophy, Finland) |
|
| Journees Internationales de Ventilation
a Domicile (JVD) |
Lyon, France. 100732.3540@compuserve.com |
| Muscular Dystrophy Ireland |
+353 1 872 1501; fax:+353 1
872 4482 |
| Citizens
for Independence in Living and Breathing |
Toronto, Ontario, Canada |
| ALS
Association |
|
| National Association for Ventilator-Dependent
Individuals (NAVDI) |
In Cleveland. Email: swilpula@aol.com |
| National Association of Pediatric
Home and Community Care |
Email: dorothy.page@banyan.ummed.edu |
| National
Spinal Cord Injury Association |
|
| PCA-HHA |
Connects homecare medical professionals
with people in need of such services. |
| HealthGate |
Health information and procedures
in non-technical language |
| Medical
Industry Conference Calendar |
9th Annual calendar (for fee)
lists almost 2,000 events worldwide in areas such as medical
equipment and respiratory care. |